Two snow days in a row! Woo Hoo. Those are the best words for anyone who works in a school. Especially when we are on this streak of 6 weeks, no days off. These two days were beyond exciting, even if we did get 20 inches of snow. But, it leaves the brain to do a lot of thinking at the same time. I am a huge hockey fan. To me, hockey is life. You an either blame if on me living on the Canadian border, or just that I live in a Drinking City with a Hockey Problem LOL. But for us in Western New York, if you don't embrace the winter and the winter weather, you resent where you live. So, we love our hockey, our ice skating, our snow sports. We have a program here for our persons with disabilities, it's called SABAH (Spirited/Skating Athletes Bold At Heart). In the winter, they ice skate and have a big show in the arena here where all their friends and family can come and watch them skate. They also have other programs where athletes can play team sports together. They have school programs, like the program that my school is involved in. It's a pretty awesome program. The show is in a couple of weeks, and everyone is getting excited.
But the realization is that LegalQuad and I can't go to that stuff together. Being a high level quad, he has no control over his body temperature. When he gets cold, his body can't warm itself back up. When it gets hot outside, he can't sweat to cool himself down. It's just part of the injury. But when I hear the words, 'I probably couldn't go', it hurts my insides. Because I love to do things like that. I love hockey, I love SABAH shows, I love Disney on Ice. And I understand the why. But it doesn't make it any easier to say OK to. It doesn't make it better. It just gives a reason for the No, probably not. Once the winter comes, it's like my little hermit has returned. Because it's too cold or too much snow to go out in.
Sometimes I wish I had someone to talk to about this. I wish I had someone to understand. I wish I didn't feel so alone besides me and him. Yes, it's us against the world. But sometimes I feel like it's me against the SCI world.
