Sunday, December 27, 2015

The Distance

So, as the Christmas season draws to a close, and the year is quickly following, I have spent a lot of time reflecting.  The title of this post has a two-fold meaning.  

This year has been a crazy learning experience for me.  I went back to school in January for my Master's Degree, which took a serious toll on my emotional state.  At that time, I was working full time, working part time, and going to school part time.  I was miserable and seriously crashing from the stress of it all.  It took me nearly failing out of my Masters program to realize that I'm not superwoman, and I needed to cut back on my stressors.  So, in April I said goodbye to the Arena and my part time job.  

In late May I learned of the term Devotee, and an explanation of the feelings I have had for so many years.  June 1 I joined an online community that I can only describe as completely eye opening for me.  It gave me a place of belonging finally.  And they took me in, and I feel I have really grown as an individual.  There is an offshoot of the site, which is more of an adult site, and that is where I met my amazing LegalQuad.  And my life has not been the same since July 23.  After a little over a month, we met in person on September 5, and now I could not imagine my life without him.  

As I reflect on this, it brings up the distance that I have come over time.  There is currently a person who works at my university that is on paid administrative leave because of the way that she treats the students.  I had problems with her while I was there, and I signed a petition to have her removed.  It is no secret to most that I have had mental health problems in the past.  I still do, but the symptoms are much better than what they were.  She tried to throw me out of school because of these problems.  I look at my life then, and the mess that it was.  I was barely getting by, just barely holding the pieces of my life together.  Then I look at today.  I have a job, I am in school, and I have a wonderful boyfriend.  I have come such a long way from where I was.  The distance amazes me.  

Then there is the distance between my boyfriend and I.  When Legalquad is at school, we are about 150 miles apart.  That may not seem like a lot, but it is when you don't drive.  it's torture.  Well, right now, he's home, which is about 450 miles from me.  And I am struggling with this distance.  I am missing him constantly.  Because I just want to be with him.  Learning to manage a long distance relationship is one of the most difficult things that I've had to do.  But I wouldn't change the person that I'm with.  I might just change our distance situation.  

So, here is to an even better 2016, with the one that I love.  I can only hope that we continue to grow and get closer as time goes on.  

Tuesday, December 1, 2015

The Unexpected

I have not always known what a Devotee (Dev) is.  Honestly, it a pretty new term to me.  Have I always known that I was different?  Yes.  When I was a kid, probably around 11, I remember my curiosity being piqued about persons with disabilities.  I met a girl a bit older than me in a chat room on AOL (yes, we are going back in time a bit LOL).  She was a C6/C7 complete Quad.  We chatted about what it was like to be paralyzed, and I said things that I didn't necessarily mean, and it got me in trouble with my mom when she found out about it.  I was told I couldn't get online anymore, and when I was allowed back on, it was all monitored.

My curiosity never stopped though.  I joined Myspace groups about PWD.  I just wanted to learn and I was curious about it all.  However, it eventually went mildly dormant.  The feelings went away, probably from years of being told that I was wrong in my thoughts.  I learned to suppress them.

That was though, until Covert Affairs came on.  I had heard about the show, but had not watched it.  I was channel surfing though one day and watched part of.  I had to have more, I had to watch more Auggie.  For those that don't know, Auggie Anderson is a character on the show.  He was blinded in an explosion while serving in the Army in Special Ops.  Of course, Auggie's disability intrigued me.  So, when I got my Kindle the following year, I began reading books where the main character was disabled in some way.  This eventually led back to a main character that was paralyzed.  Damn, all those thoughts came rushing back.  However, what was really interesting was that not too long before all of this, the story about a woman who has Body Integrity Identity Disorder (BIID)  .BIID woman These people are also know as Pretenders, and are usually looked down upon in any community.  However, I learned through my own experience and from discussing with other Devs that it is a common thought among Devs to think that they have BIID before they find out about Devoteeism.  Through my reading though, I found out about Devs.  I actually read a book about a Dev, and that was how I figured out what was really going on in my head.  

I read about a website that was devoted to Devs and PWDs, and thought that I would explore it.  What could it hurt?  I didn't realize then that what I was finding was what I had been living in silence.  There were other people like me.  Some of them were "in the closet" like I am still.  My boyfriend obviously knows that I'm a Dev.  But other than that, no one that knows me personally knows that I'm a Dev.  Needless to say, it was not easy trying to explain to my family how I met a Quad online.  But that is a whole other story.  

Those people online on those websites have become like family.  They are the ones that I go to with questions and concerns, because they understand where I'm coming from.  Many have been in my position before.  I have gone on other websites for PWDs, looking for extra help and information and experience about being with a Quad.  There are so many questions that I don't even know how to ask that I have gone looking for information on.  And these people, without actually knowing that I am a Dev, are honestly just rude and sometimes nasty.  There are people in these online communities, however, that really understand.  And I really hope that through this Blog, it helps others out there that really need the support.  Eventually, at least on my end, this will become a little more intimate.  It will discuss things that are usually off-limits, that really need to be discussed.